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Plan Underway To Form Fiji Haemophilia Foundation

A plan is underway to form the Fiji Haemophilia Foundation that will look after the interest of those diagnosed with haemophilia. This was confirmed by co-founder Roshika Deo at the first
19 Feb 2018 12:10
Plan Underway To Form Fiji Haemophilia Foundation
From left: Dr Julia Philip, Roshika Deo, LA Kelly Communications (USA) president Laureen Kelly, Interim president Kunal Prasad and Randall Curtis at the first medical symposium focused on haemophilia at the Nadi Bay Resort in Wailoaloa Road, on February 18, 2018. Photo: Waisea Nasokia

plan is underway to form the Fiji Haemophilia Foundation that will look after the interest of those diagnosed with haemophilia.

This was confirmed by co-founder Roshika Deo at the first haemophiliac foundation in Fiji and the first medical symposium focused on haemophilia at the Nadi Bay Resort in Wailoaloa Road, on Saturday.

Haemophilia, which is also spelled hemophilia, is a mostly inherited genetic disorder that impairs the body’s ability to make blood clots, a process needed to stop bleeding.

This results in people bleeding longer after an injury, easy bruising, and an increased risk of bleeding inside joints or the brain.

Ms Deo said: “We are doing the foundation work now where we will elect members to be part of the foundation and plan to affiliate with the World Federation of Hemophilia (WFH)  in due time.

“At this stage with preliminary discussion, we will be looking at three executive board members and two board and medical advisory committees made up of doctors and nurses.

She added the objectives of the foundation would be to create awareness, source services and medications, and advocate for people with haemophilia in Fiji.

Interim president Kunal Prasad, 23, who suffers from severe haemophilia since he was six months old is leading the foundation. 

He said: “There is a general lack of awareness, stigma, discrimination and major gaps in medical services for people living with this genetic condition.   

“We are creating a data base on those unidentified or undiagnosed haemophilic either they get later diagnosed in life or don’t get diagnosed at all. Through the foundation we will be able to provide the medication to the haemophilic and reach out and get registered.”

Mr Prasad reached out to LA Kelly Communications (USA) president Laureen Kelly, who is an expert in haemophilia education through Facebook.

Ms Kelly said: “Our work in developing countries is to start help organisation for haemophilia and it has to be patient led since the patients suffers the most.”

“We are here to donate medicine to Kunal, help start an organisation and train the doctors on how to use the donated medication.”

Over 50 participants including medical practitioners, nurses, educators, people with haemophilia and their families were at the symposium.

Meanwhile, Dr Julia Philip, a haemophiliac medical specialist from New Zealand, was also part of the two day event which ended yesterday.

Edited by Percy Kean

Feedback:  waisean@fijisun.com.fj

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